Amyotrophic Lateral Sclerosis的简称,中文译为肌萎缩侧索硬化症(肌无力肌萎缩亦称渐冻人症,“渐冻人”们都在极清醒的状态下,眼睁睁看着自己被“冻”住——不能动,不能说话,不能吞咽,直到不能呼吸。更令人绝望的是,当今医学尚无法提供任何有效的治疗方式,换句话说,这种病没有治愈或好转的可能),是一种运动神经元混乱疾病,是累及上运动神经元(大脑、脑干、脊髓),又影响到下运动神经元(颅神经核、脊髓前角细胞)及其支配的躯干、四肢和头面部肌肉的一种慢性进行性变性疾病。临床上常表现为上、下运动神经元合并受损的混合性瘫痪。此病病因不明,无有效疗法,患者平均存活时间3至5年。 由于尚未了解原因,这些神经细胞逐渐死亡,引起神经纤维死亡,从而引发通过神经纤维获得信息的肌肉失去功能。ALS患者发病的年龄从十几到八十几岁,中年晚期(55-65岁)是ALS的高发年龄段。通常ALS首先出现于四肢部分,产生虚弱、僵硬和抽筋现象,有时ALS也首先出现于嘴与喉咙处,使人难以正常发声,影响音量和音质。 莫里:1994年,莫里被查出患上肌萎缩性侧索硬化,逐渐失去活动能力。1994年,莫里罹患“渐冻人症”,一年后与世长辞。 霍金:在21岁时不幸患上了会使肌肉萎缩的卢伽雷氏症,所以被禁锢在轮椅上,只有三根手指可以活动。 王甲,在2007年9月,王甲说话开始迟钝;10月,喝水时玻璃杯从手中跌落,同事笑称说话开始含糊的他要走周杰伦路线;12月,24岁的末尾,不抽烟不喝酒、单身、经常健身的他被告知自己得了一种罕见的疾病——肌萎缩侧索硬化症(ALS)。
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肌无力肌萎缩亦称渐冻人症
来源:呼吸机4s店www.cpap4s.com 时间:2011-12-28
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